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Sarah Cutler avatar
Sarah Cutler

Please Help us raise money for the MPS SOCIETY and MPS VI Research

Helping to fund vital research and support for The Society For Mucopolysaccharide Diseases (The MPS Society) because Our son Josh has MPS VI (marouteaux lamy syndrome)

£8,074.31
raised by 59 supporters
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  • Event: MPS Awareness Day, 15 May 2015

The Society For Mucopolysaccharide Diseases (The MPS Society)

We support affected individuals & families to raise awareness of MPS diseases

Charity Registration No. 1143472 and Scotland SC041012

Story

Thanks for taking the time to visit my JustGiving page

This is Josh, he is 9 years old

When Josh was 2 and a half he was diagnosed with a rare progressive disease called Maroteaux Lamy Syndrome (MPS VI).

There are only around 30 people affected with MPS VI in the UK and just 1,100 world wide!

Josh has a weekly infusion to help slow down the progression of the disease which affects his Eyes, Liver, Spleen, Heart and Bones, but there is NO cure!!

Josh is the happiest boy in the world...despite what he goes through, he has had over 350 infusions and will have them every week for the rest of his life.

Josh goes to school 4 days a week and loves football, he tries to be a normal boy, but he is fighting a huge battle. We need a cure for this horrible disease. .. and you can help!!

The MPS Society have been amazing to us from day one, they help families affected with MPS VI and other MPS diseases all over the country and help fund vital research into these terrible diseases.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving .  Once you donate, they’ll send your money directly to the MPS Society.

Thank you 

Love Josh and all the family x

Photos

5
  • Josh loves his Football x
  • Josh with his 3 beautifull sisters x +3

Supporters

59