My son is a lovely 8 year old boy called Jimmy. At birth, Jimmy was diagnosed with a rare genetic condition called Prader-Willi Syndrome (PWS). As Jimmy is growing up, PWS presents ever-changing challenges. Alongside his behavioural and developmental delay, Jimmy has a constant hunger for food. The message our brain sends to our tummy when we've had enough to eat simply doesn't happen for Jimmy.  This leaves him with an insatiable appetite and desire to find food which, without 24/7 support and supervision, puts Jimmy at risk of all sorts of additional health concerns.  With food being so essential to every day life, as well as being an inevitable part of socialising (Birthdays, Easter, Christmas to name but a few), all of us have had to adapt.

I am running the marathon for two reasons, first and foremost to raise money for Prader-Willi Syndrome Association UK (PWSA), a charity that offers invaluable support to families experiencing the daily challenges of PWS.  PWSA also supports research studies in the hope that, one day, a cure might be found for this constant hunger that people with PWS suffer. Secondly I fell poorly last year whilst training for a half marathon. After tests and scans I was diagnosed with a Schwannoma tumour, which is growing from my facial nerve. When Karen (pwsa) rang me and mentioned the London Marathon it gave me a focus to get my health back on track whilst raising lots of money for a great cause. 

Thank you for taking the time to read my page and thank you for making a donation. I am going to give this my all!

Kate x 

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