Inspired by a young adult who was diagnosed late with Vascular Ehlers Danlos Syndrome (VEDS), I am choosing to run Edinburgh Marathon to raise money and awareness of this life threatening connective tissues disorder. 

The disorder affects all tissues, arteries and internal organs making them extremely fragile and exposing the person to sudden arterial or organ failure. 

Following complications of his syndrome he is now needing 14hours a day of stoma care, and although sleep deprived he is still managing to studying for his A levels. 

Training to run 26.2 miles is a small comparison to what this young lad and his Mother goes through on a daily basis. 

🌈 £20 donation could help EDS Support answer a call from somebody who suspects they may have EDS - answering questions and giving them the confidence to push for a diagnosis.

🌈 £35 donation could help source new evidence based information about managing EDS

🌈 £50 donation could help almost 10,000 people access a webinar by a medical professional.

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