lorraine wilby

Lorraine's JSF Wakefield Run 2020 page

Fundraising for Jon Shaw Foundation
£1,520
raised of £500 target
Donations cannot currently be made to this page
In memory of Jon Shaw
Challenge yourself to try something new, help us provide equipment to young people living with epilepsy to support independant living and help reduce the risk of SUDEP. Help us also improve the mental health and well being of bereaved siblings.

Story

Jon Shaw Foundation was set up in memory of Jon, who died aged 19 from SUDEP (SUDDEN UNEXPECTED DEATH IN EPILEPSY) in June 2019. The charity aims to - 1. Support young people with epilepsy by providing grants for equipment such as alarms, monitors and other safety aids not normally available through NHS.2. Provide services and activities to improve the mental health of bereaved siblings. 3. Promote awareness of SUDEP, work with and support other organisations specialising in the research of this devastating cause of premature mortality.

We are determined to raise funds and awareness about the risks in epilepsy particularly about SUDEP.

He gave so much to so many people and he was taken just as his future was looking great and he had so much left to do. Hopefully your kind donations will help in the research of Epilepsy and to raise awareness of the risk of death through SUDEP

Thank you for reading our story and your contribution. 



About the campaign

Challenge yourself to try something new, help us provide equipment to young people living with epilepsy to support independant living and help reduce the risk of SUDEP. Help us also improve the mental health and well being of bereaved siblings.

About the charity

Jon Shaw Foundation

Verified by JustGiving

RCN 1189073
We provide monitoring equipment and alarms to help keep young people living epilepsy safe and regain independence. We support and improve the mental health of bereaved siblings and close friends by funding counselling and other therapies. We work with organisations to promote awareness of SUDEP.

Donation summary

Total raised
£1,520.00
Online donations
£1,520.00
Offline donations
£0.00

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