Lucy's page
Lucy Jeffries is raising money for Prader-Willi Syndrome Association Uk
Story
Thanks for taking the time to visit my JustGiving page! I am running the Great North Run for the third time to raise funds for this phenomenal charity who support those affected by Prader-Willi Syndrome, and for my friend Rebecca’s gorgeous little girl, Ellie, who has the syndrome. Please help me to raise as much as possible to help PWSA continue to support the families who need them.
Welcome to PWSA UK
We offer a wide range of information and support to help families and professionals manage the
complexities of Prader-Willi syndrome
complexities of Prader-Willi syndrome
What is PWS?
Prader-Willi syndrome (PWS) is a rare, complex genetic disorder that affects both males and females from birth and throughout their lives. It causes low muscle tone with consequent motor developmental delays, a mild to moderate learning difficulty, incomplete sexual development, and emotional and social immaturity, which can lead to challenging behaviours. During childhood, an overwhelming and insatiable chronic appetite usually develops which, without rigorous food management and exercise regimes, leads to food seeking, stealing and life threatening obesity. PWS occurs randomly in about 1:22,000 births and it is estimated that there are about 2,000 living with PWS in the UK.
What We Do
PWSA UK works with those living with PWS, their families and friends together with those supporting or working with people with PWS, to help them manage this complex syndrome.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.