Thanks for taking the time to visit our JustGiving page! We are Lucy, Lindsay and Louise and we’re running the Great North Run in September to raise funds for this phenomenal charity who support those affected by Prader-Willi Syndrome, and for our friend Rebecca’s gorgeous little girl, Ellie, who has the syndrome. Please help us to raise as much as possible to help PWSA continue to support the families who need them and raise awareness of PW!

Welcome to PWSA UK

We offer a wide range of information and support to help families and professionals manage the complexities of Prader-Willi syndrome

What is PWS?

Prader-Willi syndrome (PWS) is a rare, complex genetic disorder that affects both males and females from birth and throughout their lives. It causes low muscle tone with consequent motor developmental delays, a mild to moderate learning difficulty, incomplete sexual development, and emotional and social immaturity, which can lead to challenging behaviours. During childhood, an overwhelming and insatiable chronic appetite usually develops which, without rigorous food management and exercise regimes, leads to food seeking, stealing and life threatening obesity. PWS occurs randomly in about 1:22,000 births and it is estimated that there are about 2,000 living with PWS in the UK.

What We Do

PWSA UK works with those living with PWS, their families and friends together with those supporting or working with people with PWS, to help them manage this complex syndrome.

https://www.pwsa.co.uk/

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.