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Maddie Agnew avatar
Maddie Agnew

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Fundraising for ACT for SMA

277 %
£277.45
raised of £100 target
by 19 supporters
Donate
  • Team members: Jon Agnew
  • Event: Perkins Great Eastern Run 2019, 13 Oct 2019

ACT for SMA

The Ally Cadence Trust provides support to families affected by Spinal Muscular Atrophy Type 1. Children with SMA Type 1 have limited movement and may have breathing difficulties. We offer many items of specialist equipment to them that are not readily available on the NHS

Charity Registration No. 1133272

Story

So I signed up for the Perkins Great Eastern Run in Peterborough. 

My dad used to do this run when I was the same age as Mae, and I thought I would have go. He tells me he used to run this in 1 hours 40. Chances of me doing anything close to this are slim to none. Don't worry Jeff, you still hold the record. Unless of course Jon, who is doing it with me gets a bit of a sprint on. 

I am fundraising for a charity that raises money for The Ally Cadence Trust, committed to supporting families affected by Spinal Muscular Atrophy, also known as SMA, Type 1. Spinal Muscular Atrophy is a neuromuscular genetic disease that results in progressive muscle weakness.

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Supporters

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