In September 2018 I began my friendship with the coolest , smiliest , cheekiest, little dude who loves to stack cushions on my head and more importantly loves my singing 🎤🎤🧑‍🎤. In meeting Jacob I was introduced to Dravet and all that that involves. I am humbled by this little mans resilience and determination to bounce back after Dravet has put him in hospital time and time again. His family have to watch helpless against  the waive of Dravet over their boy , life goes on with smiles and laughter and the house is full of joy and love . Please donate to my page and help fight this life threatening condition. Thanks Mandie x