Thanks for taking the time to visit my JustGiving page.

In March 2012 my niece Anabelle at 13 months was diagnosed with a rare genetic disorder called MPS 1, Hurler Syndrome which without a bone marrow transplant meant she would die before teenage years.

Anabelle had the bone marrow transplant and endured months of medical treatment,  seeing this and her parents go through it , was heartbreaking.  Sadly on Christmas day 2012, when they believed they were over the worst, Anabelle aged just 22 months died at Southampton General Hospital from an infection.

MPS 1 is so rare that it occurs in 1 in 100,000 newborns.  Please help me raise money to help other families who are affected by this rare disorder and hopefully find a cure so they don't have to go through what my brother, sister-in-law and the whole family has been through.

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