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Martin Shaw

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I’m running the London Marathon for CdLS Foundation UK because It makes a difference and joins families together

112 %
£1,686.40
raised of £1,500 target
by 56 supporters
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  • Event: London Marathon 2018, 22 Apr 2018

CdLS Foundation UK

The CdLS Foundation exists to ensure early and accurate diagnosis of Cornelia de Lange Syndrome ; promote research into the causes and manifestations of the syndrome and help people with a diagnosis of CdLS to make informed decisions throughout their lifetime

Charity Registration No. 1054033

Story

Thanks for taking the time to visit my JustGiving page.

I’m very proud to be chosen to raise money for The CdLS Foundation by running in the 2018 London Marathon (my very first Marathon).

“Cornelia de Lange Syndrome (CdLS) is a very rare genetic disorder present from birth, but not always diagnosed at birth. It causes a range of physical, cognitive, and medical challenges and affects both sexes equally. The syndrome is named after Dutch pediatrician Cornelia Catharina de Lange, who described it.“

My partner has been editing the CdLS magazine ‘Reaching Out’ for many years, so I have seen the difference the charity makes, and relies on, with donations and fundraising.

I’m honoured to support its hard work with a crazy idea to run my first marathon on April 22, 2018. I’m going to try and get a time I can be proud of, under four hours, so I hope to see one or two of you along the way to spur me on.

Thanks for donating, 

Martin :) 

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

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