Matt's page

Matthew Newns is raising money for KSA

Team: Newns

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Peak District Ultra Challenge 2023 · 8 July 2023 to 9 July 2023 ·

The KSA helps people with KS/XXY by hosting an annual conference, Activity Weekends and virtual/in-person meetings. It provides an informative website, a Helpline and newsletters. The KSA works with medical professionals to improve awareness, diagnosis, support and to encourage research.

Story

In September 2022, I received some blood test results that pointed to a possible genetic condition. In December, it was confirmed that I had Klinefelter's syndrome, so rather than being XY, I am XXY. It affects 1 in 650 men, yet neither of us had ever heard of it.

There are many symptoms of this condition that now I have a diagnosis can hopefully be improved. A big one that we've both been getting our heads round is that we will likely never have any biological children. This is news that no one ever wants to hear, but we certainly didn't expect to hear it in our 20s before we'd even properly thought about starting a family.

Lucy's way of coping with anything is always running. She entered the ballot for the Royal Parks Half Marathon in October and decided that if she was successful, I would run it for KSA - so here we are! Lucy and I also wanted to do something together, so we are both taking part in the 25km ultra peak challenge in July.

We want to raise money for research into this condition, and we want to raise awareness of it too - Klinefelter's Syndrome isn't rare, but it is rarely diagnosed.

Any support and donations will be greatly received!

Donation summary

Total
£250.00
+ £51.25 Gift Aid
Online
£250.00
Offline
£0.00

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