The KSA helps people with KS/XXY by hosting an annual conference, Activity Weekends and virtual/in-person meetings. It provides an informative website, a Helpline and newsletters. The KSA works with medical professionals to improve awareness, diagnosis, support and to encourage research.

Story

In September 2022, Matt received some blood test results that pointed to a possible genetic condition. In December, it was confirmed that Matt had Klinefelter's syndrome, so rather than being XY, Matt is XXY. It affects 1 in 650 men, yet neither of us had ever heard of it.

There are many symptoms of this condition that now Matt has a diagnosis can hopefully be improved. A big one that we've both been getting our heads round is that we will likely never have any biological children. This is news that no one ever wants to hear, but we certainly didn't expect to hear it in our 20s before we'd even properly thought about starting a family.

My way of coping with anything is always running. I entered the ballot for the Royal Parks Half Marathon in October and decided that if I was successful, I would run it for KSA - so here I am! Matt and I also wanted to do something together, so we are both taking part in the 25km ultra peak challenge in July.

We want to raise money for research into this condition, and we want to raise awareness of it too - Klinefelter's Syndrome isn't rare, but it is rarely diagnosed.

Any support and donations will be greatly received!

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Donation summary

Total
£1,164.83
+ £243.75 Gift Aid
Online
£1,164.83

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