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Matt Rice avatar
Matt Rice

Matt's Channel Swim 2018 page

Channel Swim for Ehlers-Danlos Support UK because both children suffer from this disabling condition

174 %
£8,727.05
raised of £5,000 target
by 122 supporters
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  • Event: Matt's Channel Swim 2016, 23 Sep 2016 to 28 Sep 2016

Ehlers-Danlos Support UK

We educate, inform and raise awareness to support those living with Ehlers-Danlos

Charity Registration No. 1157027

Story

I'm attempting to swim the 21 miles across the English Channel this year! Three times as many people have climbed Everest than swum the Channel, and just getting across is considered one of the pinnacles of open water swimming. It has to be completed in the same vein as the first crossing in 1875 - swimming trunks, one swim hat and goggles; that's it, nothing that retains heat so coping with the cold is one of the challenges, plus swimming for 11-16+ hours of course, depending on the conditions and my speed!

Why am I doing this? Ambition stretching back ten years, but also to raise awareness and funds for Ehlers Danlos Syndrome, a connective tissue disorder that both my children suffer from. Amy is 25 and has EDS-HT that means she is largely wheelchair bound as can only take a few steps with crutches. It also adversely affects her eyes, teeth, bladder (she is fitted with a catheter) and she frequently dislocates joints anywhere on her body. Amy also has regular seizures that are very likely to be connected to this disorder, so life is very challenging. Asher is 18 and has it to a lesser extent but has been unable to attend school/sixth form full-time for many years.

EDS is an underfunded charity and needs research into the more debilitating forms of the condition, so I am attempting to raise as much money as possible, but also help to raise awareness through my social media channels.

Thank you for your support.

Photos

3
  • Training in Dover
  • Training in Dover

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