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Michael Davies avatar
Michael Davies

Dragon Ride: in aid of Spinal Muscular Atrophy

I am raising awareness and money for SMA for ACT for SMA because I have been personally affected by the disease

136 %
£680.00
raised of £500 target
by 31 supporters
Donate
  • In memory of: Stephanie Holgate
  • Event: Dragon Ride L'Etape Wales by le Tour de France 2018, 10 Jun 2018

ACT for SMA

The Ally Cadence Trust provides support to families affected by Spinal Muscular Atrophy Type 1. Children with SMA Type 1 have limited movement and may have breathing difficulties. We offer many items of specialist equipment to them that are not readily available on the NHS

Charity Registration No. 1133272

Story

On June the 10th I will be cycling 233km (138.5 miles) in the Brecon Beacons. I am doing this to raise money for "ACT for SMA"- a charity that is very close to my family's hearts. 

I lost my sister when she was 7 months old to Spinal muscular atrophy. This condition manifests in varying degrees of severity, which all have in common progressive muscle wasting and mobility impairment. SMA is the most common genetic cause of infant death.

Im hoping to raise £500 amount for to help with funding towards further research, treatment, awareness  and support for those affected by SMA. Any donations no matter how big or small will be much appreciated. 


Thanks for taking the time to visit my JustGiving page.


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