Dragon Ride: in aid of Spinal Muscular Atrophy
I am raising awareness and money for SMA for ACT for SMA because I have been personally affected by the disease
The Ally Cadence Trust provides support to families affected by Spinal Muscular Atrophy Type 1. Children with SMA Type 1 have limited movement and may have breathing difficulties. We offer many items of specialist equipment to them that are not readily available on the NHS
Charity Registration No. 1133272
I lost my sister when she was 7 months old to Spinal muscular atrophy. This condition manifests in varying degrees of severity, which all have in common progressive muscle wasting and mobility impairment. SMA is the most common genetic cause of infant death.
Im hoping to raise £500 amount for to help with funding towards further research, treatment, awareness and support for those affected by SMA. Any donations no matter how big or small will be much appreciated.
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