Our daughter isabella has Cms(congenital myasthenic syndrome )she was diagnosed at 7 weeks after developing frequent unexplained apnoeas(breathing problems),she was admitted to intensive care and underwent various tests,when we were given her diagnosis we were devastated as the information we were given seemed pretty bleak.
We want to raise as much money as we can into research to learn more and help families with children who already have this rare condition
This money is to go to the childrens branch of mg
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