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Natassja Chadwick avatar
Natassja Chadwick

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Doing a 10 mile run for The British Porphyria Association because My children have EPP

140 %
£700.00
raised of £500 target
by 33 supporters
Donate
  • Team members: Karran Speakman and Rachel Ramsden
  • Event: Simplyhealth Great South Run 2018, 21 Oct 2018

The British Porphyria Association

It aims to improve the understanding of Porphyria, by reaching out to patients, relatives, doctors and medical staff, etc. Early diagnosis is vital if we are to improve the quality of life for those affected by it. It also provides a social support system for sufferers and their families

Charity Registration No. 1089609

Story

Thanks for taking the time to visit my JustGiving page.

In my doctors words “we have been tasked with the greatest challenge which is protecting our children from the sun!”  It’s spring, summer is on its way and so is the daily battle and anxiety of trying to keep both our children covered and out of the suns glare. This doesn’t stop when we are inside as the UV rays and visible light that causes their blood to boil can still get to them. There is no cure and treatment is expensive, they have creams and tablets which act as a barrier but they don’t ever provide full protection. 

We have challenges and tasks ahead just like Everyone else does, but I’m determined to help raise some money and awareness with the aim to make my children’s lives and generations to come, easier. Please help me do this by sponsoring me to complete a 10 mile run in October. I can’t do this alone  and I promise that every little ounce of support will help us all. 

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

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