Nick Smith
Super George
Fundraising for CDKL5 UK
Story
Thank you for helping and supporting my son and everyone with CDKL5 disorder, your donation means the world to us and we cannot thank you enough.
Nick, Lindsey and George
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£2,477
raised of £3,000 target
by 58 supporters
Donations cannot currently be made to this page
Celebrating the birthday of George , 22 February 2017
Participants: George
We are fighting to give our kids a chance to live long, happy and healthy lives
About the charity
CDKL5 deficiency disorder is a rare condition which manifests in the first few months of life with rare and complex epilepsy. Children and adults with CDKL5 require life long support. CDKL5 UK aims to support families through direct support and patient advocacy. #Togetherwearestronger
Donation summary
- Total raised
- £2,477.00+ £228.75 Gift Aid
- Online donations
- £2,477.00
- Offline donations
- £0.00
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