Playing with Jacob is fun , we laugh , we walk, we walk , walk a bit more (any body who knows Jacob will get what I mean.......😊), we do puzzles,  read "Thats not my........." and those wheels keep on going round 🚌🚌🚌. Sounds like Its a barrel of laughs doesnt it....... and it is but ......... Dravet is always there and just when you least expect it "bang" there it is and my friend is on oxygen , being comforted and talked to as Dravet does its thing. Could last for a few seconds , or minutes or half hours to hours its so unpredictable. And Im helpless , cant stop it, just got to make sure hes safe , procedures are followed and ambulances called and hes just my friend. Imagine if that was your son, brother or grandson......... Jacob is a remarkable little dude , we could all learn a lot from him but his family is frigging amazing . Please donate as much or as little as you can to help Dravet Syndrome UK support my friend and his family and all those families that deal with this syndrome on a daily basis. Thanks Olivia