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Peter Griffith's Fundraising Page

Pete Griffith is raising money for Batten Disease Family Association
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The BDFA Sponsored Walk Challenge 2008 · 10 May 2008 ·

Batten disease is a group of rare, progressive neurodegenerative, genetic metabolic diseases that occur in children & adults worldwide. The BDFA's Vision is to be the central point of excellence in the UK for supporting affected families funding research into a potential cure.

Story

BDFA Sponsored walk, 10th May 2008 - Vale of the White Horse, Oxon.

Our beautiful girls, Misha & Natalie, died of Late Infantile Batten Disease - Misha died in 2002 aged just 7 & Natalie died a year later in 2003. So far there is no cure & the result is always fatal. However....

The BDFA came alongside us, offering us friendship & support in our darkest days. Fundraising is vital to continue reaching out to families suffering a positive diagnosis. The charity also help fund research, so that one day there might be a cure or at least a treatment to help halt the onset of the disease.

To see us talk about our girls, the BDFA & the walk click on this link http://www.buckstv.co.uk/battendisease.html 

That is why Rach, Pete, Sophie & Zak are doing the sponsored walk. Many are joining us on the day, but if you can't, I hope you will consider sponsoring us. The charity is small, so every penny you donate will help. 


Donating through this site is simple, fast and totally secure. It is also the most efficient way to sponsor us: Batten Disease Family Association will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.

So please make a difference and sponsor us now!

Many thanks for your support.

Much love,

Pete, Rach, Sophie & Zak xx.

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Donation summary

Total
£1,588.00
+ £292.77 Gift Aid
Online
£1,358.00
Offline
£230.00

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