Steven Gill is coordinating a series of events designed to raise money for the MPS Society to honour his father Andrew who had Fabry disease.
Story
I am taking part in Steven Gill's #59events for The MPS Society to help raise awareness of MPS, Fabry and related diseases. These diseases are rare genetic diseases which can cause a range of issues throughout a person's lifetime. By raising funds and awareness we are helping others affected by these little known diseases.
The MPS Society provides professional support to children, adults and families affected by MPS, Fabry and related Lysosomal Storage Diseases and funds research into treatment and therapies. These diseases are rare, genetic, life-limiting conditions.