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Rebecca Swan avatar
Rebecca Swan

Rebecca's Perkins Great Eastern Run 2017 page

To raise awareness for Spinal Muscular Atrophy for ACT for SMA because SMA affect children between 6 - 18 Mouths.

113 %
£1,130.00
raised of £1,000 target
by 47 supporters
Donate
  • Event: Perkins Great Eastern Run 2017, 08 Oct 2017

ACT for SMA

The Ally Cadence Trust provides emotional and financial support to children affected by Spinal Muscular Atrophy Type 1, the leading genetic killer of under 2's with an average life expectancy of just 8 months. Children with SMA have very limited movement and may have breathing difficulties

Charity Registration No. 1133272

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Thanks for taking the time to visit my JustGiving page.

will be completing the Peterborough half marathon in aid of Act for SMA.

Grace Elizabeth Sinclair, daughter of Neil and Allyson, was born on the 27th August 2016. In July 2017 Grace was diagnosed with Spinal Muscular Atrophy (SMA) Type 1. SMA causes progressive loss of movement and muscle weakness as a result of muscle wasting. Grace is hopefully about to commence treatment but sadly there is no cure at this time. Only 20% of children diagnosed reach their first birthday. The Ally Cadence Trust (ACT) for SMA supports families with children who have been diagnosed with SMA Type 1. They provide vital equipment, sensory toys and emotional support to families at this difficult time. Supporting this charity will allow them to continue to support other families in the future with equipment such as specially adapted car seats, prams and cot wedges. It will allow them to provide sensory equipment such as fibre optic lights, bubble light towers and other lightweight sensory toys and most importantly it will allow the founders to continue to visit families and offer support to them.

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