#oneRAREstep
Participants: Ben Frape
Participants: Ben Frape
Rough Runner, South London 2019 · 5 October 2019 to 6 October 2019 ·
I’m participating in a Rough Runner a 10k obstacle run (think ninja warrior meets total wipe out) on the 5th October, to raise money for children diagnosed with AADC (Aromatic Amino Acid Decarboxylase Deficiency). The simplest way of describing this is that it is an infant form of Parkinson’s. This is an ultra rare disease and currently affect on 5 children in the UK. The monies raised will go towards receiving treatment abroad, which currently is not available in the UK. The BASIC cost of each child's treatment is 68,680 Euros- excluding travel.
Thanks for taking the time to visit my JustGiving page.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.
Charities pay a small fee for our service. Learn more about fees