#oneRAREstep

richard ellis is raising money for The AADC Research Trust

Participants: Ben Frape

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Rough Runner, South London 2019 · 5 October 2019 to 6 October 2019 ·

#oneRAREstep
Campaign by The AADC Research Trust (RCN 1114367)
WITH YOUR HELP... The AADC Trust is launching the #oneRAREstep Campaign to raise funds for our AADCd children to access potentially life saving & transformative experimental brain delivered AAV2-hAADC Gene Replacement Therapy Treatment. THANK YOU

Story

I’m participating in a Rough Runner a 10k obstacle run (think ninja warrior meets total wipe out) on the 5th October, to raise money for children diagnosed with AADC (Aromatic Amino Acid Decarboxylase Deficiency). The simplest way of describing this is that it is an infant form of Parkinson’s. This is an ultra rare disease and currently affect on 5 children in the UK. The monies raised will go towards receiving treatment abroad, which currently is not available in the UK. The BASIC cost of each child's treatment is 68,680 Euros- excluding travel. 

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Donation summary

Total
£572.00
+ £126.75 Gift Aid
Online
£572.00
Offline
£0.00

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