Jon Shaw Foundation was set up in memory of Jon, who died aged 19 from SUDEP (SUDDEN UNEXPECTED DEATH IN EPILEPSY) in June 2019. The charity aims to - 1. Support young people with epilepsy by providing grants for equipment such as alarms, monitors and other safety aids not normally available through NHS. 2. Provide services and activities to improve the mental health of bereaved siblings. 3. Promote awareness of SUDEP, work with and support other organisations specialising in the research of this devastating cause of premature mortality.