229 %
£1,147.40
raised of £500 target
by 60 supporters
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Laura Leslie Lauren Scaramuzza avatar
Laura Leslie Lauren Scaramuzza

Laura and Lauren Running Mad 2

Fundraising for ACT for SMA

229 %
£1,147.40
raised of £500 target
by 60 supporters
Donate
  • Team members: Lauren and Laura
  • Event: Asics Greater Manchester Marathon 2017, 02 Apr 2017

ACT for SMA

The Ally Cadence Trust provides emotional and financial support to children affected by Spinal Muscular Atrophy Type 1, the leading genetic killer of under 2's with an average life expectancy of just 8 months. Children with SMA have very limited movement and may have breathing difficulties

Story

The Alley Cadence Trust is a UK registered charity, committed to supporting families affected by Spinal Muscular Atrophy (SMA) Type 1. SMA is a neuromuscular genetic disease that results in progressive muscle weakness in children/babies. For more information of how this amasing family set up their own charity to support other families who are going through the same. They have other children of their own and they drop everything to support new family and get the equipment they need straight to them all over the country. Its not a well know / big charity so the money will help massively. please see the link below.

http://www.actsma.co.uk/

£10 - Provides a new diagnosed family with information pack and telephone / email support

£100 - funds an apnea monitor which alerts parents/ carers if the child stops breathing

£300 - funds a selection of sensory toys, including fibre optic lights and light shows or an underwater or DSLR camera to loan to families to record every precious moment

£500 - funds a specialist car seat with pushchair for loan to families. this enables the child to sit at the correct angle, safely, in the car.

The car seats are especially important as the babies need to be at a certain angle to breathe. This makes it possible for the parents/carers to transport the babies safely to hospital appointments and to go places to make those precious memories together.

Thanks for taking the time to visit our JustGiving page. Any amount will help towards this charity and we really appreciate you spending the time to read and donate!  We are training hard to make sure we complete this as it is close to our hearts  

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

Loads of Love

Lauren and Laura xx

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Supporters

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