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Close friends had a beautiful baby called Noah who was diagnosed with SMA Type 1 and died at 15 months old. Noah was one of the happiest babies you could ever hope to meet. He had the most beautiful big brown eyes & the cheekiest smile you will ever see.
SMA stands for Spinal Muscular Atrophy; it is a genetic disorder that is currently incurable. SMA affects the motor neurons in the spinal cord & this results in muscles throughout the body becoming weaker and weaker. 80% of babies with SMA Type1 sadly pass away before their first birthday.
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