Arthur was diagnosed with NF1 as a 1 year old following a routine trip to the doctors where they noticed his cafe au lait marks. Following numerous tests the diagnosis was confirmed. We had never heard of the condition and knew nothing about it. Google can be a scary place!

Arthur faces his challenges but takes it all in his stride. He’s doing brilliantly and is regularly monitored - we are always keeping a close eye on any changes or developments with the condition.

We are running London Marathon and Birmingham 10k to raise awareness and much needed funds for Nerve Tumours UK to help do our bit