Nerve Tumours UK

Support 26.500 affected by Neurofibromatosis in the UK

26,500 people have nerve tumours, so please help us raise £265,000 a donation for each person in the UK. Any support you give will make a difference.
raised of £265,000 target
by 1503 supporters
RCN 1078790; SC045051

Be a fundraiser

Create your own fundraising page and help support this cause.

Start fundraising


Shine A Light on Neurofibromatosis

There are currently more than 26,500 people with Neurofibromatosis in the UK, and each one of our Specialist Neurofibromatosis Nurses already looks after busloads of patients. But, we need your help, now, to both maintain these existing services and to expand further, to all corners of the UK.

There is no cure for Neurofibromatosis, but it makes a great difference to a person's quality of life if they are provided with adequate and effective support and care, from birth onwards.

Any size of donation will make a real difference:

£10 funds a Schools Advisory Information Pack

£25 funds Nerve Tumours UK platforms & e-newsletters, essential updates for the community, for one month

£60 funds an initial and follow up call from the National Neurofibromatosis Helpline

£145 funds a School Advisory Meeting with parents & associated medical practitioners

£150 funds a Home Visit, crucial for newly diagnosed de novo cases

£1000 funds a part-time Specialist Neurofibromatosis Nurse for approximately one month

These are some guidelines on how you can help - we are grateful for any donation and support

Nerve Tumours UK is fully dedicated to the health and well-being of our community. We believe in equal opportunities for all, and people with Neurofibromatosis should be given the correct support to achieve their potential.

About the charity

Nerve Tumours UK

Verified by JustGiving

RCN 1078790; SC045051
Nerve Tumours UK provides support and information, as well as campaigns and raises awareness on behalf of over 26,500 people in the UK who have NF, the group name for Neurofibromatosis Type 1 (NF1), NF2-related-Schwannomatosis (NF2) and Schwannomatosis (SWN).

Donation summary

Total raised
+ £10,843.35 Gift Aid
Online donations
Offline donations
Direct donations
Donations via fundraisers

* Charities pay a small fee for our service. Find out how much it is and what we do for it.