Noah- Raising awareness Childhood Tumour Trust

Raising awareness · 18 July 2021
Thanks for taking the time to visit my just giving page.
I am 15 and recently received the news that I have an inoperable brain tumour?How do you deal with that ?I honestly don’t know , I suppose the only way to cope is to carry on helping others.There may be no cure for me & I have no idea what lies ahead .However I do know I’m not ready to quit.Am I angry ?Damn right I am ,am i scared?Totally !!!The only thing i know is ,its in the core of my brain filling in the space growing around my central nervous system & blood vessels .With only one option available of chemotherapy & no cure I will just carry on regardless .Lets see if together we can raise funds & awareness for a charity that are trying to help children like myself.I won’t be setting myself a definitive challenge it will be whatever i can muster myself to do on that day.Whether its a 10 mile walk or a 500m swim (i can only use 1 arm) or abseil down a building…
The childhood Tumour Trust is a relatively new charity whose aim is to provide help & support to young people and the families affected by the genetic disorder Neurofibromatosis Type 1(NF1). They send young people to Camps here in the UK & the USA, provide support to families, free days out for families and send gift bags to children with NF1. They continuously raise awareness whilst campaiging for better care and fund research. The charity is run by unpaid workers.
Neurofibromatosis Type 1 affects around 25,000 people in the UK and is a condition of extreme variation and severity. It can cause tumours to grow on nerves anywhere inside & outside the body, but can also affect the development of non-nervous tissue such as the bones.
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