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Lizzie Harling

Shine for Sophie

Celebrate Sophie's birthday by fundraising for ACT for SMA because they support families affected by SMA Type 1

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  • Celebrating the birthday of Sophie, 11 Dec 2017

ACT for SMA

The Ally Cadence Trust provides emotional and financial support to children affected by Spinal Muscular Atrophy Type 1, the leading genetic killer of under 2's with an average life expectancy of just 8 months. Children with SMA have very limited movement and may have breathing difficulties

Charity Registration No. 1133272

Story

We are celebrating Sophie's 2nd Birthday by raising funds for the amazing Ally Cadence Trust for Spinal Muscular Atrophy. They provide essential practical and emotional support to families affected by Spinal Muscular Atrophy Type 1 across the UK. 

Sophie adored lights. Christmas tree lights, fibre optic lights, coloured lanterns, anything that glowed in different colours. At just two weeks old, Sophie was mesmerised by the changing colours of the Christmas tree lights at home. Latterly, she was given fibre optic lights by ACT for SMA which kept her amused for hours. We took them everywhere with us. 

Shine for Sophie celebrates her love of lights whilst raising funds for the superb Ally Cadence Trust for Spinal Muscular Atrophy. Join us by putting up/wearing electric lights, taking a photo and donating just £2 to ACT for SMA. 

Please share your photos with us! 

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

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