This will be our second half marathon for MPS Society UK. One day we might complete a full marathon together!

Read the blurb below to understand MPS conditions and the charities main aims and strategy.

MPS and related Lysosomal Storage Diseases are degenerative genetic conditions. Children born with an MPS or related disease are unable to produce particular enzymes responsible for the breaking down of waste products in the body. Used materials that cannot be broken down remain stored in the cells. Although there is a very wide spectrum of severity, MPS and related diseases cause progressive physical disability. Whilst there is no cure for any of the MPS or related diseases a number of treatments, including Haemopoietic Stem Cell Transplant (HSCT) and Enzyme Replacement Therapy (ERT) 

MPS Society UK

Vision for all people affected by the diseases to live the lives they want

Mission to transform lives through specialist knowledge, support and advocacy and research

Objectives 2021 – 2023
The future for the MPS Society is one where we put our members at the centre of everything we do in line with our vision for all people affected by the diseases to live the lives they want. In order to achieve this we have set ourselves three objectives:
 1. Exceptional support and advice
 2. World class clinical care
 3. Effective treatments