My brother David sadly passed away in 2003 at the age of only 41. In recent years it has become apparent that his death may have been due to symptoms caused by a genetic disorder called Haemochromatosis (GH). As myself and my remaining siblings have all been diagnosed with the condition it is highly likely he had it as well. If we had been aware of it at an earlier stage of our lives he may have still been with us.

On the 4th November 2018 I am running the NEW YORK MARATHON  in memory of David and in aid of The Haemochromatosis Society.

(Due to ill health I am unable to compete in the London Landmarks ½ Marathon as originally planned.)

Genetic Haemochromatosis is a genetic disorder which causes those affected to absorb too much iron. Having too much iron means that it is deposited in the organs in the body, leading to serious complications including liver and heart damage, joint damage and mental health problems. Diagnosis of GH, unfortunately, is often made later than ideal, perhaps at a stage where iron overload has started to cause severe symptoms or serious damage to the organs of the body. Relatively simple blood tests, genetic tests, and recognition by healthcare professionals of patterns of symptoms, should lead to diagnosis sooner than it often does. The charity works to raise awareness of GH with families, healthcare professionals and policy makers, in an effort to address this problem.

Early diagnosis saves lives. Haemochromatosis if identified early can be readily treated and patients can enjoy a normal lifespan and good quality of life.
Thank you so much again for reading and if you could spare some money - all donations would be greatly appreciated. BUT just as important, is that people are made aware of this disorder.

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