Story
Swim school friends taking part: Eva Higgins, Harry Maitland, Nicholas Wynne, William Philpotts, Aidan Lam, Alice and Chloe Binks, Hannah Jowell-McHugh, Kitty Jowell-McHugh, Benji and Bobby Lawson, Robyn Wolsely, Andrey, Gabriella Costa Hofion, Gregory + more
My name is Eva and I am 3. I have Cystic Fibrosis and its not very nice. My little body gets clogged up with sticky mucus which makes it hard for me to digest food and put on weight and makes it hard for my lungs to work. There is no cure for CF and my life expectancy is only around 35. To try and prolong the inevitable damage to my lungs and digestive system, I take dozens of pills a day, spend 2 hours every day having nebuliser treatment and chest physio and have to have regular intravenous antibiotics. And all thats when I am well! When I am poorly, I suffer from chest infections and have to stay in hospital. Its not very nice when all I really want to be doing is have fun. (For more info about CF visit www.cftrust.org.uk)
I love swimming and its really good for helping my lungs to stay strong. This year, to celebrate my 4th birthday, I am organising and taking part in my very first sponsored swim. My friends and I will be swimming as many widths as we can in our swimming lessons with the Manchester Swim School on Monday 6 June and Saturday 11 June to raise money for the Cystic Fibrosis Trust.
No one has found a cure for CF yet but the CF Trust is working on some exciting new therapies, including Gene Therapy, that one day might mean I can look forward to a relatively long and healthy life, and Mummy and Daddy can have a rest. The CF Trust also make sure that the hospitals that treat children with CF have what they need to give us the care we need to give us more of a future. Please help support me and my friends at the Manchester Swim School to raise some money to help the CF Trust to carry on supporting our family and researching new therapies to help me and other children and young people like me.
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