Joanne Wynn

Jo, Heather & Helen

Fundraising for The Schinzel-Giedion Syndrome Foundation
raised of £150 target
We raise awareness and support research to improve the lives of children with SGS


Jo, Heather and Helen will be taking part in July for Jude 2023 where we will be taking on a challenging walk of 21 miles from Brighouse to Ackworth.

Jude was born in July 2018 with an ultra rare life limiting neuro-degenerate condition, SGS. He battled bravely every day of his short but special life, being cared for and loved by his amazing parents Emma and Steve, and his big brother, Fraser. He sadly passed away in March 2022. 

A separate group of friends, including Emma and Steve, will be walking part of the Cleveland Way, 21 miles from Scarborough to Whitby, on the same day as our walk, 8th July, meaning the love for Jude is being spread far and wide with the much needed fund raising and awareness for SGS 💜

Please support our team as generously as you can.

Thank you x 

About the charity

Our mission is to provide support to families caring for a child with Schinzel-Giedion Syndrome (SGS), to raise awareness of SGS and to facilitate and support vital medical research that will improve the quality and length of life of children living with this life-limiting, rare genetic condition.

Donation summary

Total raised
+ £181.00 Gift Aid
Online donations
Offline donations

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