Just after Anabelle's 1st birthday she was diagnosed with a very rare genetic condition called Mucopolysaccharide, abbreviated to MPS. Anabelle had MPS1 Hurlers Syndrome.

Sadly Anabelle's journey ended on 25th December 2012, but the support continues. Please take the time to look at the blog her parents developed to share theirs and Anabelle's journey, loveableanabelle.blogspot.co.uk

Essentially, MPS stops the natural development of the body due to the absence of an Enzyme. Nearly all those affected by MPS will progressively become physically and, in most cases, mentally disabled and the majority will not make it to adulthood. This is a rare disease and as such the knowledge of how to treat it is still growing. We are at the stage where we haven’t yet found a cure but are finding treatments to combat the effects.

MPS provided such valuable support from the start of diagnosis and this continues to date. We want to ensure their valuable research and support continues not just for our family but for the many others affected by this. There is no such thing as a small amount, every penny donated goes someway to help the societies work.  

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