"Ty Hafan is a leading Welsh children's charity which provides comfort, care and support to children with life-limiting conditions, along with their families. Through our vibrant hospice and diverse community programmes, we offer short -break care and help them make the most of the time they have together; creating memories and ensuring a short life is a full life."

Olivia, my cousins granddaughter, was born with a rare genetic disorder called Pontocerebellar Hypoplasia Type 2. PCH2 is a rare condition that affects the development of the brain. Signs and symptoms vary but may include microcephaly, developmental delay with lack of voluntary motor development, intellectual disability, and movement disorders (chorea, dystonia), dysphagia (difficulty swallowing), impaired vision, seizures, and an inability to communicate. Ty Hafan gave Olivia respite care during her short life, giving support to her and her family and providing different therapies. They also gave Olivia palliative and end of life care when the time came. Olivia was two years old when she died.