Tiede Gibson

Phil and Mandy will be running the London Marathon 2021 in aid of William

Fundraising for Just4Children
£1,278
raised of £3,000 target
Donations cannot currently be made to this page
Event: London Marathon 2021, on 3 October 2021
A Wish for William
Campaign by Just4Children (RCN 1164473)
Please make Williams wish come true by helping him achieve everything that he can in his life. He may have a rare condition but with your help and his determination anything is possible.

Story

On the 3rd of October myself and Phil will be running the London marathon in aid of wish for William. Please read below about this local boy and let’s get behind this local family.  Our training has already started and you’ll see us training around looe. 

Please give us a shout out as you drive by

The family would like to take  William to the NAPA centre in Boston which is a 3 week intensive, the cost including flights and accommodation would be approximately £11,000. The therapy intensive would be 4 hours a day, 5 days a week and would be a combination of physical, occupational and speech therapy.
Hello everyone, my name is William. I am coming up to 3 and live in Looe. I was diagnosed in August 2018 with a very rare genetic condition called Allan-Herndon-Dudley syndrome (AHDS). It is so rare that it is basically unknown to most medical professionals. It is estimated that approximately 320 boys are living with AHDS around the world.

This condition means that I have a quirky gene that makes my muscles weak and underdeveloped resulting in me being very limited in what I can do. I am making slow progress because I am very determined but also because I have started on a trial drug called Triac.  I will, however, need constant therapy for the foreseeable future to help me get to where I need to be.

Unfortunately, these therapies aren’t free, or cheap but I would love to be able to access more physical, occupational and speech therapy. including an intensive course called CME MEDEK which is to help children with gross motor and global delay.

Any contribution, no matter how little, could make all the difference.

Thank you
Love William xxx



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About the campaign

Please make Williams wish come true by helping him achieve everything that he can in his life. He may have a rare condition but with your help and his determination anything is possible.

About the charity

Just4Children

Verified by JustGiving

RCN 1164473
Just4Children is passionate about the relief of sickness & preservation of good physical & mental health of children & young people under 25 years resident in the United Kingdom & Ireland by providing & assisting in the provision of services & grants to enable them to obtain their medical needs.

Donation summary

Total raised
£1,278.00
+ £180.25 Gift Aid
Online donations
£1,278.00
Offline donations
£0.00

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