Vanessa Demko

Vanessa's Sky Punks page

Fundraising for The Lily Foundation
£720
raised of £400 target
by 29 supporters
Donations cannot currently be made to this page
The Lily Foundation

Verified by JustGiving

RCN 1122071
We fund research & raise awareness to support the families affected by Mito

Story

My beautiful daughter Sophie suffers from mitochondrial disease which means she has very little energy and struggles with everyday activities that you and I may take for granted. Sophie is a real inspiration and has an amazingly positive attitude and sunny nature.

Please take a look at the Lily Foundation website to understand the condition and learn about all the research that is being funded to try and improve the lives of children and young adults and the support that is provided for many families .

Please donate as generously as you can.

THANK YOU !!!!!

The Lily Foundation was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today.Did you know every twenty minutes a child is born who will develop Mitochondrial Disease by the age of 16! There is no cure for this disease which is for many, debilitating and life limiting.Please stand with us and fight Mitochondrial Disease and fight for hope.

About the charity

The Lily Foundation

Verified by JustGiving

RCN 1122071
The Lily Foundation funds research into Mitochondrial Disease and other metabolic disorders. It also raises important awareness and supports those families who are affected with metabolic disorders.

Donation summary

Total raised
£720.00
+ £145.00 Gift Aid
Online donations
£720.00
Offline donations
£0.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.