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Damien Robson

Damien's Twitch Streaming Marathon

Fundraising for CdLS Foundation UK & Ireland
£1,117
raised of £150 target
by 55 supporters
Donations cannot currently be made to this page
CdLS Foundation UK & Ireland

Verified by JustGiving

RCN 1054033
We ensure early, accurate diagnoses of CdLS to understand CdLS and help those with it

Story

Thanks for taking the time to visit my JustGiving page.

The second Saturday in May (11th) is CdLS Awareness Day. To raise funds and increase awareness of this über-rare genetic condition, I'll be streaming a wide variety of my favourite games for either 12 or 24 hours starting at midday.

Cornelia de Lange syndrome (CdLS) is a genetic disorder. People with this syndrome experience a range of physical, cognitive, and medical challenges ranging from mild to severe. The syndrome is a widely varied, meaning people with the syndrome have varied features and challenges.

As a parent to a child with CdLS, I feel I must highlight the work that the CdLS Foundation UK & Ireland do to support and advise on such a rare syndrome. They are incredible in what they do, from the professional members (doctors, therapists, etc.) to the other families, and as such we are immensely indebted to them for all of the guidance they have given us. Keep an eye on Twitter for more information in the coming weeks, and visit to http://CdLS.org.uk to find out more about their fantastic work, as well as to get an idea of what we face on a daily basis.

As ever, I'll be streaming live from Twitch over on my channel, http://www.twitch.tv/ThatWaffleBloke.

About the charity

CdLS Foundation UK & Ireland

Verified by JustGiving

RCN 1054033
The CdLS Foundation exists to ensure early and accurate diagnosis of Cornelia de Lange Syndrome ; promote research into the causes and manifestations of the syndrome and help people with a diagnosis of CdLS to make informed decisions throughout their lifetime

Donation summary

Total raised
£1,116.66
+ £128.08 Gift Aid
Online donations
£1,116.66
Offline donations
£0.00

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