Trevor Clark

Pauline Brace's Fundraising Page

Fundraising for Action Duchenne
£1,877
raised of £10,000 target
by 2 supporters
Donations cannot currently be made to this page
Action Duchenne

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We improve the lives of those with DMD to ensure those lives are no longer limited

Story

Thats just £1 per foot for our 10,000 feet skydive!  Please help us attain our goal!

On Fathers day, several mad crazy people (listed below) will throw themselves from a perfectly good plane in their quest for a treatment for Duchenne.  Being one of those mad crazy people, I have to say that Im terrified!

But Im far more scared of what lies ahead for my little boy, and all those others affected by the devastating muscle wasting condition Duchenne muscular dystrophy. 

So please please support us and help us find a cure for this cruel  condition.  2 babies every week are born with Duchenne in the UK, lets change what that diagnosis means by supporting Action Duchenne who fund research projects for treatments.  Currently there are 2 drugs on trial in the UK, help us continue to fund such research, the answers to this condition are out there waiting to be found.  Time is not on our side, we hope that YOU are. 

Its Time To Stop Wasting!

The mad and crazy are:

Pauline Brace, mum to Josh (who has Duchenne) age 10, and Regional Advocate for Action Duchenne.

Professor Steve Wilton, travelling all the way from Perth, SW Australia to join us!  Leading figure in the current exon skipping drugs trial for a treatment for Duchenne (ongoing here in the UK) , member of the Mdex Consortium.  Hero to many!

Amanda Cooke, vets receptionist at Belmont Vets, friend to parents who have a son with Duchenne.

Michelle Harris, Amanda's work colleague

Melanie Williams, teachers 3 teenagers who have a younger brother with Duchenne

Joe Plant who read the Hereford Times article and wanted to join us

Tracy Comley, aunt to little Jake, recently diagnosed with Duchenne

Thanks for visiting our fundraising page.

Donating through Justgiving is quick, easy and totally secure. It’s also the most efficient way to sponsor me: Action Duchenne gets your money faster and, if you’re a UK taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation.

So please sponsor us now!

About the charity

Action Duchenne

Verified by JustGiving

RCN 1101971
We have a very clear vision: a world where people's lives are no longer limited by Duchenne muscular dystrophy.

Donation summary

Total raised
£1,877.00
Online donations
£450.00
Offline donations
£1,427.00

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