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The Maddi Foundation is a non profit charity which was founded by the family of a young teenage girl “Maddi” who in 2016 was diagnosed and started battling Spastic Paraplegia Type 15 (SPG15), a degenerative neuro disease. Symptoms present themselves generally in early teens causing paralysis in the limbs with progressive brain abnormalities resulting in loss of nerve cells, visual impairment and possible juvenile Parkinson's. This is a genetic type of motor neuron disease. To date there is no cure or treatment!
Conditions this rare receive very little attention and funding so with your help we can try to change this so our children can have a brighter future. The Maddi Foundation aims to continue to support medical research to help cure this disease and also help other similar rare diseases.
The Maddi Foundation Registered charity number 1174374