As you can imagine, living with CF is a constant worry.

Whilst Jo & I have moved on considerably since receiving the 'bomb shell' last March about Sophie having CF, we still have days [many of them] when we ask How? and Why?...and What does the future hold for Sophie.

Externally you wouldn't know she had CF - she looks like any other toddler...active, affectionate, entertaining and the Apple of her daddy's eye! [well, she shares that with her big Sis, Olivia].

Sophie's mum plays a vital part in keeping her well...which consists of a strict daily regime of medication & physio.

Unfortunately there's no escaping...CF is a chronic condition and life expectancy is still only 31 years.  The condition affects her major organs and clogs them with thick, sticky mucus...the lungs are especially vulnerable as they become a breeding ground for bacteria...which in turn can lead to repeat chest infections and problems like pneumonia and pulmonary failure.

The CF Trust rely heavily on family and friends to raise funds.  They're currently running a series of trials involving Gene therapy...and whilst this is pioneering work, it is also very costly and the Trust desperately needs to raise more money.

After a little, gentle persuasion - well a cuddle from Sophie actually - i decided to participate in this year's Great North Run.  I'm now upto 2 miles...wow, just another 11 miles to work on!!.  I forget how old i am - it's tough for an old man to run 13.1 miles....but then it fades into insignificance when i think about the reason - Sophie and the other kids and young adults that suffer daily with this condition.

Please sponsor me....the CF Trust needs every penny; and Jo & I really value your support.

Donating through Justgiving is quick, easy and totally secure. It’s also the most efficient way to sponsor me: Cystic Fibrosis Trust gets your money faster and, if you’re a UK taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation.

Thank You so much

Nigel, Jo, Olivia & Sophie

xxxx