Adam's fundraiser for Ehlers-Danlos Support UK

Adam Rathe is raising money for Ehlers-Danlos Support UK
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13-hour walk/run · 2 November 2023

Ehlers-Danlos Support UK improves quality of life for people living with the Ehlers-Danlos syndromes (EDS). We work across the UK to support, advise and inform those living with the condition and the medical professionals working with them.

Story

This page is aimed at raising money and increasing awareness for a condition which you probably haven't heard of: Ehlers-Danlos Syndrome (EDS)

EDS is a condition which affects the connective tissue. For some, the symptoms can be mild, but for others they can disabling: joints can dislocate easily; extreme fatigue is commonplace; and mobility and independence severely reduced.

This condition will affect 1 in 5000 people in the UK, but stats can be become lost, so imagine this: You are invited to places and have to say no because your body won't allow you to go; you get invited somewhere for lunch and some drinks for a few hours, and need a day before and after to prepare and recover; your joints dislocate through simple movement causing often excruciating pain; sleep and rest - which you need due to the fatigue - become difficult with the pain. This is what it's like for a lot of people for a condition you probably haven't heard of - and neither did I until a few years ago.

This is where you come in. I will be walking and running for 13 hours straight on November 2nd 2023. My aim is to raise £500 for Ehlers-Danlos Support UK who, among other things, research treatment and provide fantastic support for people affected by this condition.

Thank you so much for whatever you give - you really will make a difference.

Donation summary

Total
£650.00
+ £142.50 Gift Aid
Online
£650.00
Offline
£0.00

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