Story
This page is aimed at raising money and increasing awareness for a condition which you probably haven't heard of: Ehlers-Danlos Syndrome (EDS)
EDS is a condition which affects the connective tissue. For some, the symptoms can be mild, but for others they can disabling: joints can dislocate easily; extreme fatigue is commonplace; and mobility and independence severely reduced.
This condition will affect 1 in 5000 people in the UK, but stats can be become lost, so imagine this: You are invited to places and have to say no because your body won't allow you to go; you get invited somewhere for lunch and some drinks for a few hours, and need a day before and after to prepare and recover; your joints dislocate through simple movement causing often excruciating pain; sleep and rest - which you need due to the fatigue - become difficult with the pain. This is what it's like for a lot of people for a condition you probably haven't heard of - and neither did I until a few years ago.
This is where you come in. I will be walking and running for 13 hours straight on November 2nd 2023. My aim is to raise £500 for Ehlers-Danlos Support UK who, among other things, research treatment and provide fantastic support for people affected by this condition.
Thank you so much for whatever you give - you really will make a difference.