Thanks for taking the time to visit our JustGiving page for Aiden's fundraising.

I was 25 weeks pregnant with twins when we discovered Aiden has issues with his heart. After completing a sales pitch at work, I took myself to Broomfield hospital after growing concerned I hadn't felt Charlie move much that day. The midwife confirmed Charlie seemed fine, and just as she said it, he came to life and wiggled about. But then alarms started to go off..

Aiden's heart rate suddenly flipped to 230beats per minute, the nurse tutted and said the machine must be faulty so got another one, alarms continued and she called for a doctor.

Before I knew it, I had four doctors around me, one of which was putting a cannula into my wrist and giving me a pill to take. I asked what they were doing to be told my baby was is cardiac distress and I was being prepped for a c-section. I refused to give consent until my husband arrived, knowing that at 25 weeks I was putting my babies at huge risk of not surviving.

What I didn't know is one doctor had slipped away, she'd gone out of the room and called The Royal Brompton Hospital for advice. They immediately stopped all action and insisted I was transferred to their care. Next came a saga between the hospitals! Broomfield refused to release me with a baby in cardiac distress - they wouldn't put me in an ambulance to Brompton. I ended up having to discharge myself and take myself on 3 different trains to get to the hospital.

After a worrying hospital stay, I was allowed to go home but I was on medication to control Aiden's heart and this was carefully managed in case it affected me or Charlie, his twin.

I had to go to Broomfield every other day for monitoring. Every SVT episode Aiden went into was met with panic and pushing me for a c-section. I was VERY fortunate - the consultant I was under at Brompton had given me her mobile number and every time I had to call her to speak with my local hospital in order to release me!

The problem here was the lack of understanding at my local hospital of SVTs in babies, especially babies not born yet.

What followed was a very stressful pregnancy, the twins were born at 33 weeks (of their own choice!) and we were then split up as a family as Aiden suffered many SVTs and was bluelighted with my husband to Brompton Hospital whilst Charlie and I remained under Broomfield care.

After a year of a lot of hospital visits, medication reviews and discussions of surgery, we are now on a carefully tailored medical plan for Aiden and he has been stable for a number of months. However, the stress of even a cold is immense as it can bring an SVT episode on and we are once again bluelighted to London.

The Brompton Fountain have supported us through every single visit, issue at home, stresses around medication - even on Christmas Day, one of the Fountain's volunteers were waiting to meet us as the ambulance pulled up and Aiden was once again admitted to their care.

The Fountain are a club you wish you didn't have to be part of, yet you are so grateful for. They provide support to parents, siblings and the patients. They provide equipment for hospitals and home, toys and activities in hospital stays, relaxation treats like pampering evenings for parents staying on wards with their children. They even offered to pay the courier who was transporting breastmilk from me at the NeoNatal unit in Chelmsford to Brompton when our twins were split up.

This has been a massively hard journey to navigate so far, and we hold many concerns for the future too - but I honestly do not how we'd have made it this far without the charity by our side.

If you can help at all - big or small, we'd be forever grateful. We hope funds raise can help educate other hospitals and provide the hugs, support, shoulders to cry on as well as vital research and equipment needed to help others go through what we have.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.