Phoebe is such a strong, amazing little girl who has not let her diagnosis stop her from achieving all that she can. She is determined and tries so hard to keep up with her peers but she does struggle.

She is the happiest little girl, always up for a fun and a laugh. Although she can’t show us facially that she is happy, we know she is. We are so incredibly proud of how she has handled everything, taking it in her stride and showing everyone that she is proud to be who she is.

We, as a family, will to do everything in our power to help her achieve all she wants to in life and with the support of the charity, specialists and our amazing family and friends we will make it happen.

Phoebe loves playing with her friends and doing crafts but also likes to chill on the couch with a blanket and watching tv, more so when she’s feeling tired and achy.

80% of your donation will go to research into FSHD and 20% which will be held in trust by the charity for Phoebe's future needs.