Phoebe is such a strong, amazing little girl who has not let her diagnosis stop her from achieving all that she wants to so far in her young life.

She is the happiest little girl, always up for a fun. Although she can’t physically smile, the happiness radiates and glows from her. We are so incredibly proud of how she has handled everything, taking it in her stride and showing everyone that she is proud to be who she is.

She understands how her body is affected by the condition and knows when she needs to rest, but she never complains (apart from usual 6 year old problems 😂).

Phoebe loves playing with her friends and doing crafts but also likes to chill on the couch with a blanket and watching tv, more so when she’s feeling tired and achy. She has a wonderful group of friends who understand and support her.

We, as a family, will to do everything in our power to help her achieve all she wants to in life and with the support of the charity, specialists and our amazing family and friends we will make it happen.

The support everyone in our community showed us at our Sunday Tea fundraiser event in July 2024 was incredible - we raised over £13,000.

As devastating as it is to find out that your child has a progressive muscle wasting condition, there is no point worrying about things you cannot change. You can only hope and pray that her future is bright and she has access everything she needs to make the most of this life.

**80% of your donation will go to research into FSHD and 20% which will be held in trust by the charity for Phoebe's future needs.**

Thank you so much for reading our story about our family and if you are able to donate, even a small amount, we are eternally grateful and appreciative of everything. The love and support we receive is just incredible."

Thank you so much for reading our story about our family and if you are able to donate, even a small amount, we are eternally grateful and appreciative of everything. The love and support we receive is just incredible.