I'm running the London Landmark Half Marathon to raise funds for children with NKH. I'll be running this April in support of The Mikaere Foundation & in memory of a Sam Hulance's son, Kai.

This rare neurometabolic disorder needs significant research to support developing medicines to stop progression and relieve symptoms. One in three children with NKH aren't expected to see their first birthday. With your support, we can change this outcome!

Please donate generously.