We’re back — and pedalling with purpose.

It’s been a while since we pulled on our CF Trust gear and hit the road — but we’re back in full force for the iconic London to Brighton cycle.

Once again, we’re riding for Arlo (our hero) and for everyone living with cystic fibrosis. But this time, we carry a special dedication in our hearts: to those with CF who can’t benefit from the latest life-changing therapies available in the UK.

To take you back — Arlo was diagnosed with CF after a routine blood test at just four weeks old. Since that day, our lives have revolved around medications, physio, hospital visits, and learning to be his nurse, dietitian, and biggest cheerleaders — all rolled into one.

Every single day, Arlo powers through over an hour of treatments to stay healthy. He takes medication before every meal, antibiotics for recurring infections, supplements to support his growth, and physiotherapy to help clear his lungs.

And he does it all with a smile.

CF will never define him.

Just over a year ago, Arlo began a new therapy — a CFTR modulator called Kaftrio — a breakthrough drug that has transformed the lives of many. For us, it felt like a parachute opening after a long, freefalling descent since diagnosis day.

But Arlo couldn’t tolerate the drug. After a few short months, we had to stop it.

It felt like the parachute strings had been cut.

Still, we remain as determined as ever — and more motivated than ever — to raise funds for the next big breakthrough. One that will work for Arlo. One that will give him the longer, healthier life he deserves.

The Cystic Fibrosis Trust is leading the way — funding cutting-edge research, supporting families, and fighting for better treatments, better care, and ultimately, a cure.

Please support us as we ride. For Arlo. For every person with CF.

For a future free from cystic fibrosis.