Arlo’s Army: We Won’t Stop Until CF Does.

At just 4 weeks old, our son Arlo was diagnosed with cystic fibrosis (CF) after a routine blood test — and life changed overnight.

We were thrown headfirst into a world of medications, physiotherapy, hospital appointments, and learning to be Arlo’s nurse, dietitian, and biggest cheerleaders — all at once.

Every day, Arlo powers through over an hour of treatments just to stay healthy. He takes medication before every meal, antibiotics for recurring infections, supplements to help him grow, and does physio sessions to keep his lungs clear.

And he does it all with a smile.

Arlo is a whirlwind of joy — obsessed with buses, trains, and planes, endlessly curious, and full of love. CF is part of his life, but it will never define him. And thanks to the tireless work of the Cystic Fibrosis Trust, we're hopeful that his future will be limitless.

But hope needs fuel.

There’s no cure for CF yet. Even with groundbreaking new treatments, daily life for people with CF remains a heavy burden — and many aren't eligible for these new drugs. That's why we're raising money. To fund cutting-edge research. To support families like ours. To keep pushing until CF stands for Cured Forever.

CF affects over 11,000 people in the UK — and more than 100,000 globally. It impacts the lungs, pancreas, and other organs, turning mucus thick and sticky, and making everyday life a battle for breath.

The Cystic Fibrosis Trust is leading the charge to change this. They fund game-changing science, support families, and fight for better treatments, care, and — one day — a cure.

Join Arlo’s Army today. Stand with us. Donate. Share. Fight for a future where no child has to grow up fighting CF.