Myself and some of the Sumburgh Airport Security team will be tackling a 25 mile walk from the Airport terminal in Sumburgh to Lerwick on the 11th of July to raise money and awareness for Muscular Dystrophy!

At just five years old my beautiful niece Phoebe was diagnosed with Facioscapulohumeral muscular dystrophy (FSHD) a rare, progressive muscle-wasting condition that slowly takes away the ability to do everyday things most of us take for granted: smiling, showing emotions, lifting your arms, walking without pain or struggle.

She’s now navigating a world where her muscles weaken rapildy, but her spirit stays strong. And let me tell you, Phoebe is the definition of strength. She’s incredibly smart, bright, brave, and full of light. But behind all of that, there’s a fight going on that no child should ever have to face.

There is currently NO cure, and things could get worse for Phoebe than they are at present. I’m raising funds for the Muscular Dystrophy charity, a lifeline for families like ours, and a driving force behind the research we so desperately need.

It is estimated that only around 2000-2500 people in the UK are known to have FSHD. Phoebe is the only child known locally to have this condition which is why we find it very important to raise awareness on this!

**80% of your donation will go to research into FSHD and 20% which will be held in trust by the charity for Phoebe's future needs.**

Any support given here, on the run up to or on the day is whole heartedly appreciated! 🧡