UPDATE - DUE TO REACHING OUR TARGET OF £750 WE HAVE NOW INCREASED OUR GOAL TO £1,000. THANK YOU EVERYONE FROM THE BOTTOM OF OUR HEARTS FOR SUPPORTING THIS INCREDIBLE CHARITY. YOUR GENEROSITY IS APPRECIATED BEYOND WORDS!!!

Thank you for taking the time to visit our JustGiving page.

We are raising funds for Barth Syndrome UK, a charity dedicated to supporting individuals affected by Barth syndrome, an ultra-rare genetic condition that predominantly impacts males.

The symptoms of this condition are debilitating, including heart problems, feeding difficulties, increased susceptibility to infections, and muscle weakness leading to extreme fatigue.

As part of our commitment to raising awareness and funds for this cause, we will be participating in a 24-hour Call of Duty Livestream on December 14, 2024.

Our goal is to raise £750 to support the vital work of Barth Syndrome UK in providing assistance and resources to those affected by this condition.

Your contribution through JustGiving is simple, fast, and secure, ensuring that your support directly benefits the charity's efforts. By donating, you are making a meaningful difference in the lives of those impacted by Barth syndrome.

https://www.youtube.com/watch?v=5KbTESGKe6c&list=PLKx-wxKi1UJ_wGaOpGDsekheZDdpK5PQ4